Since BYDLS is out for a while, I'm going to chronicle what I would put on there. Just a couple things right now. My twitter account is @katielynnsarah. Follow me and tweet me who you are and what your username was. I want us to be able to converse through this or twitter. The holidays are a hard time for many spoonies. We can get through this! Tweet me the good days and the bad. Send out a tweet asking several people how they are doing. Email me at Peanutbuttercupsrock@gmail.com. Send me your name. Maybe we can make a "database" of support and email each other.
My personal struggle right now is school. I'm on homebound to give physical therapy a chance to work. I'm doing an AP class homebound. I'm just really stressed and having trouble getting stuff from some teachers. Ugh.
Saturday, December 3, 2011
Saturday, November 5, 2011
Monday, October 10, 2011
BYDLS downtime
FYI to those who read this blog and are on BYDLS, the site is down now. Apparently we grew too much, and the web hosting company can't handle us. Christine is working on getting new web hosts. Monitor the Facebook page for new updates!
Monday, September 26, 2011
Ugh, again?!?!?!?!?
Okay, so I'm just getting off of a URI, and of course I now have missed my first day of school for pain. It is the fifth day in total. I miss school! I miss my first hour teacher, and the way he teaches, the subject, everything. I miss my second hour, the amazingness that is AP English. I don't miss my credit recovery math, but I like the teacher. I miss orchestra, the being a first violin, maybe learning bass. I miss med dental, and the love of medicine. I miss physiology, and learning stuff in that class. I can barely read with my left eye. I hate this.
Tuesday, August 30, 2011
Becoming not stupid
Okay, so I am an incurable procrastinator. School starts in a week, still have approximately half a crapload (yes, that is a unit of measure) of work to do. I can get it done. It's for English class.
This semester I'm in psychology, AP English, Algebra II, Orchestra, Medical Dental (medical science class), and Physiology. Pretty easy and working schedule.
Meds adjusted, doing good but I'm flaring a little. Insomnia from it. Maybe I can get some of that crap done. Who knows? All I know is that this year I will prove that I am sick, not stupid. Then in college I will prove that I am sick, not stupid. I know I am sick, not stupid. I'm working on proving that to the world.
Oh yeah, and a part time job would be nice too. I'm thinking people greeter. Somewhere that I can go in my wheelchair at. Downside: I am petrified of running into family that are unsupportive.
This semester I'm in psychology, AP English, Algebra II, Orchestra, Medical Dental (medical science class), and Physiology. Pretty easy and working schedule.
Meds adjusted, doing good but I'm flaring a little. Insomnia from it. Maybe I can get some of that crap done. Who knows? All I know is that this year I will prove that I am sick, not stupid. Then in college I will prove that I am sick, not stupid. I know I am sick, not stupid. I'm working on proving that to the world.
Oh yeah, and a part time job would be nice too. I'm thinking people greeter. Somewhere that I can go in my wheelchair at. Downside: I am petrified of running into family that are unsupportive.
Thursday, July 7, 2011
I just can't build it today, I'm just too tired
Words of wisdom from my favorite news anchor and politician, Stephen Colbert. It is sad that I get my news from there, but I love him.
That being said (has nothing to do with this), am I the only one who doesn't like talking politics/ religion/ issues/ pop culture because 9 times out of 10 my odd viewpoint doesn't get respected. I was asked to sign a petition protesting the recall of a school newspaper because of an article, and was called homophobic when I wanted to see the article first. Another thing, if someone doesn't understand my viewpoint, instead of asking me, they ask my mom to clarify. Which she can't do, since she isn't me, and her attempts usually just make me look stupider, since I interject and they interject in my explanation. I see a hole in someone's argument, which is like shooting themselves in the foot credibility wise, and jump into it, and never get to finish what I was saying. People don't understand why I talk so loudly. Well:
1) my dad is hard of hearing, and sometimes you have to yell to his face for him to hear you
2) if I want to talk, I have to talk over someone, since people talk over me. Its just the dynamic we speak in on my dad's side of the family. Whomever talks the loudest gets to speak. On my mom's side it's the second anyone under 20 talks, the subject is immediately changed. Sometimes we get lucky and my grandma will make people listen. I was saying something about the Casey Anthony trial the other day, and all I was saying was that it is all a huge mess that is near impossible to understand, and that the most fair outcome would be a hung jury so it could be tried again. it turned into me getting nothing in edgewise, and me ultimately just leaving. Nobody understanding a damn thing I said.
3) honestly, it's a free country and I can talk as loudly as I want to. I'm not screaming. If you don't like it, don't listen.
Oh, yeah and being harassed is totally my fault for misinterpreting. Yeah. My fault. I'm sick and tired of dealing with this bullshit.
That being said (has nothing to do with this), am I the only one who doesn't like talking politics/ religion/ issues/ pop culture because 9 times out of 10 my odd viewpoint doesn't get respected. I was asked to sign a petition protesting the recall of a school newspaper because of an article, and was called homophobic when I wanted to see the article first. Another thing, if someone doesn't understand my viewpoint, instead of asking me, they ask my mom to clarify. Which she can't do, since she isn't me, and her attempts usually just make me look stupider, since I interject and they interject in my explanation. I see a hole in someone's argument, which is like shooting themselves in the foot credibility wise, and jump into it, and never get to finish what I was saying. People don't understand why I talk so loudly. Well:
1) my dad is hard of hearing, and sometimes you have to yell to his face for him to hear you
2) if I want to talk, I have to talk over someone, since people talk over me. Its just the dynamic we speak in on my dad's side of the family. Whomever talks the loudest gets to speak. On my mom's side it's the second anyone under 20 talks, the subject is immediately changed. Sometimes we get lucky and my grandma will make people listen. I was saying something about the Casey Anthony trial the other day, and all I was saying was that it is all a huge mess that is near impossible to understand, and that the most fair outcome would be a hung jury so it could be tried again. it turned into me getting nothing in edgewise, and me ultimately just leaving. Nobody understanding a damn thing I said.
3) honestly, it's a free country and I can talk as loudly as I want to. I'm not screaming. If you don't like it, don't listen.
Oh, yeah and being harassed is totally my fault for misinterpreting. Yeah. My fault. I'm sick and tired of dealing with this bullshit.
Thursday, June 30, 2011
No closer in close to 3 months
All we have learned is that I am...wait for it...perfectly fine. Except that I'm overweight. Way to go! Do you think we don't own a scale, or do you think I am just stupid? I mean really. Do you think that we aren't already trying to address that, or are we just going on as normal? We are waiting for my urine to turn bright red again. Thing is, it's hard to tell the color by a small sample diluted down so I can find a bright red sample. It's crazy. We are "treating me symptomatically" but my symptoms are being treated in a really crappy fashion. Day by day the pain isn't remotely close to nothing. About a 5 every day. Down from 8. Definately not around acceptable. Sleep isn't there either, but it comes with the pain. A month ago I was under the direct care of 4 doctors. After follow ups, I am now under the care of 2. One I have another appt with next week, and he will be gone, providing everything is normal; since it's cardiology, I hope they would have told us by now if it wasn't. The second is the one who is "treating me symptomatically" and I think he has no other ideas at all.
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