Monday, September 26, 2011
Ugh, again?!?!?!?!?
Okay, so I'm just getting off of a URI, and of course I now have missed my first day of school for pain. It is the fifth day in total. I miss school! I miss my first hour teacher, and the way he teaches, the subject, everything. I miss my second hour, the amazingness that is AP English. I don't miss my credit recovery math, but I like the teacher. I miss orchestra, the being a first violin, maybe learning bass. I miss med dental, and the love of medicine. I miss physiology, and learning stuff in that class. I can barely read with my left eye. I hate this.
Tuesday, August 30, 2011
Becoming not stupid
Okay, so I am an incurable procrastinator. School starts in a week, still have approximately half a crapload (yes, that is a unit of measure) of work to do. I can get it done. It's for English class.
This semester I'm in psychology, AP English, Algebra II, Orchestra, Medical Dental (medical science class), and Physiology. Pretty easy and working schedule.
Meds adjusted, doing good but I'm flaring a little. Insomnia from it. Maybe I can get some of that crap done. Who knows? All I know is that this year I will prove that I am sick, not stupid. Then in college I will prove that I am sick, not stupid. I know I am sick, not stupid. I'm working on proving that to the world.
Oh yeah, and a part time job would be nice too. I'm thinking people greeter. Somewhere that I can go in my wheelchair at. Downside: I am petrified of running into family that are unsupportive.
This semester I'm in psychology, AP English, Algebra II, Orchestra, Medical Dental (medical science class), and Physiology. Pretty easy and working schedule.
Meds adjusted, doing good but I'm flaring a little. Insomnia from it. Maybe I can get some of that crap done. Who knows? All I know is that this year I will prove that I am sick, not stupid. Then in college I will prove that I am sick, not stupid. I know I am sick, not stupid. I'm working on proving that to the world.
Oh yeah, and a part time job would be nice too. I'm thinking people greeter. Somewhere that I can go in my wheelchair at. Downside: I am petrified of running into family that are unsupportive.
Thursday, July 7, 2011
I just can't build it today, I'm just too tired
Words of wisdom from my favorite news anchor and politician, Stephen Colbert. It is sad that I get my news from there, but I love him.
That being said (has nothing to do with this), am I the only one who doesn't like talking politics/ religion/ issues/ pop culture because 9 times out of 10 my odd viewpoint doesn't get respected. I was asked to sign a petition protesting the recall of a school newspaper because of an article, and was called homophobic when I wanted to see the article first. Another thing, if someone doesn't understand my viewpoint, instead of asking me, they ask my mom to clarify. Which she can't do, since she isn't me, and her attempts usually just make me look stupider, since I interject and they interject in my explanation. I see a hole in someone's argument, which is like shooting themselves in the foot credibility wise, and jump into it, and never get to finish what I was saying. People don't understand why I talk so loudly. Well:
1) my dad is hard of hearing, and sometimes you have to yell to his face for him to hear you
2) if I want to talk, I have to talk over someone, since people talk over me. Its just the dynamic we speak in on my dad's side of the family. Whomever talks the loudest gets to speak. On my mom's side it's the second anyone under 20 talks, the subject is immediately changed. Sometimes we get lucky and my grandma will make people listen. I was saying something about the Casey Anthony trial the other day, and all I was saying was that it is all a huge mess that is near impossible to understand, and that the most fair outcome would be a hung jury so it could be tried again. it turned into me getting nothing in edgewise, and me ultimately just leaving. Nobody understanding a damn thing I said.
3) honestly, it's a free country and I can talk as loudly as I want to. I'm not screaming. If you don't like it, don't listen.
Oh, yeah and being harassed is totally my fault for misinterpreting. Yeah. My fault. I'm sick and tired of dealing with this bullshit.
That being said (has nothing to do with this), am I the only one who doesn't like talking politics/ religion/ issues/ pop culture because 9 times out of 10 my odd viewpoint doesn't get respected. I was asked to sign a petition protesting the recall of a school newspaper because of an article, and was called homophobic when I wanted to see the article first. Another thing, if someone doesn't understand my viewpoint, instead of asking me, they ask my mom to clarify. Which she can't do, since she isn't me, and her attempts usually just make me look stupider, since I interject and they interject in my explanation. I see a hole in someone's argument, which is like shooting themselves in the foot credibility wise, and jump into it, and never get to finish what I was saying. People don't understand why I talk so loudly. Well:
1) my dad is hard of hearing, and sometimes you have to yell to his face for him to hear you
2) if I want to talk, I have to talk over someone, since people talk over me. Its just the dynamic we speak in on my dad's side of the family. Whomever talks the loudest gets to speak. On my mom's side it's the second anyone under 20 talks, the subject is immediately changed. Sometimes we get lucky and my grandma will make people listen. I was saying something about the Casey Anthony trial the other day, and all I was saying was that it is all a huge mess that is near impossible to understand, and that the most fair outcome would be a hung jury so it could be tried again. it turned into me getting nothing in edgewise, and me ultimately just leaving. Nobody understanding a damn thing I said.
3) honestly, it's a free country and I can talk as loudly as I want to. I'm not screaming. If you don't like it, don't listen.
Oh, yeah and being harassed is totally my fault for misinterpreting. Yeah. My fault. I'm sick and tired of dealing with this bullshit.
Thursday, June 30, 2011
No closer in close to 3 months
All we have learned is that I am...wait for it...perfectly fine. Except that I'm overweight. Way to go! Do you think we don't own a scale, or do you think I am just stupid? I mean really. Do you think that we aren't already trying to address that, or are we just going on as normal? We are waiting for my urine to turn bright red again. Thing is, it's hard to tell the color by a small sample diluted down so I can find a bright red sample. It's crazy. We are "treating me symptomatically" but my symptoms are being treated in a really crappy fashion. Day by day the pain isn't remotely close to nothing. About a 5 every day. Down from 8. Definately not around acceptable. Sleep isn't there either, but it comes with the pain. A month ago I was under the direct care of 4 doctors. After follow ups, I am now under the care of 2. One I have another appt with next week, and he will be gone, providing everything is normal; since it's cardiology, I hope they would have told us by now if it wasn't. The second is the one who is "treating me symptomatically" and I think he has no other ideas at all.
Friday, May 20, 2011
Me Caveman
I apologize in advance for the caveman like sentince structure.
Okay, so now my Neurontin is going up. It's creating the same ol insomnia that we all know and love. Hopefully it will fix pain better. Last night, I was up till 6 am. When my mom's alarm went off. I worked for most of that time. Got loads of stuff done.
The electrodes from my heart monitor decided to cut my stomach, so I get to deal with that one now. It's pretty deep for coming from foam and paper. I got the sensitive skin electrodes, but I still take them off and clean the skin every day to prevent irritation. If they need to send me more, then they do.
I think I can sleep now. Night.
Okay, so now my Neurontin is going up. It's creating the same ol insomnia that we all know and love. Hopefully it will fix pain better. Last night, I was up till 6 am. When my mom's alarm went off. I worked for most of that time. Got loads of stuff done.
The electrodes from my heart monitor decided to cut my stomach, so I get to deal with that one now. It's pretty deep for coming from foam and paper. I got the sensitive skin electrodes, but I still take them off and clean the skin every day to prevent irritation. If they need to send me more, then they do.
I think I can sleep now. Night.
Friday, May 13, 2011
Fun days
So it's been a long time since my last entry, and a lot has changed. Saw a geneticist. Saw my rheumy and had an MRI (I'll let you guess the outcome of that one). Saw a cardiologist. Saw an endocrinologist. Ruled out loads of diseases (lupus, Wilson's, etc.) went on heart monitor (I hate electrodes.) Oh, yeah, and the wonderful weather decided to build up to a huge thunderstorm. I hate them. So much. They make me hurt all over!
Took AP tests, think I did okay.
Took AP tests, think I did okay.
Wednesday, April 13, 2011
Late night comedy
Ive been watching more than I want to. Which means, more pain caused insomnia! Of course. Getting more blood drawn, and if it's normal, then I'll get an MRI of some muscles to see inflammation, so we can find a good place for a muscle biopsy. Not endocrine. My doctor actually thanked me when I told him the psychiatrist said it wasn't psychiatric. So, sounds like we may be onto something!
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