Friday, January 21, 2011

It happened

This morning, I noticed the first tell-tale sign of lupus. I think I have the butterfly rash. It's bittersweet. On one hand, I may FINALLY have the answer. On the other, I would have lupus. I guess it isn't the worst think you could get, but this is just what I have. I have moved to the point where I have no choice but to accept it. I start school again next week! I am so happy, especially since the first two hours are an easy, self-paced math class because I couldnt get my credit last semester. I got a new hairdryer too. Going to try it later. I just want to look good enough at school, especially since I have this rash now, so that I don't get as many questions. I won't get made fun of, but I still don't feel like explaining my life's story to everyone on the street. To complecate matters, I need to have the school administration approve my medication to be carried with me. If not, I will be demanding that they bring it to me, I can't make a special trip office to office to take my pills! It's not a narcotic. It's not a controlled substance (I understand why they won't let me take lyrica with me, it's a class IV controlled substance or something like that, but I'm off lyrica!) and kids take motrin with them everywhere all the time!

Sunday, January 9, 2011

Teach or be Taught

I think I am beginning to come to terms with what my illness entails. 9 months of getting worse, sleeping on a couch because I can't do stairs, and I am learning what I can and can't do. What is good and what is bad.

Like many diseases before this, I think I'm finding something I may have. Churg-Strauss Syndrome. I'm still learning about it, but the most recent Mystery Diagnosis made me aware of this illness. Rare, autoimmune, causes pain, not too specific of a test for it, sounds about perfect. Clearly by now,it is not common. It causes pain. It seems autoimmune. I've had every test known to man.

Anyway, got a letter from Rochester College in New York, and now, I think it is a first choice college. I'm just applying for every scholarship known to man, and several colleges. If I end up getting college down in price, straight to a 4 year college it is. If not, 2 years community college, then a transfer. I still want to become a doctor. Help people like me not have to go through this. Some aren't finding that out now, but the way I see it, if I make it through teaching myself a semester of two AP classes, I can go to college being taught this stuff by a proffessor. It will be easier to be taught stuff then to teach myself stuff.

I am getting closer. I am going as fast as possible on my biology, and am reading lots of books for English. Government will happen, not as fast as my other stuff though.

2 weeks till I go back part time. I can't wait! I'm even going to try to go to Snowcoming in February.

Saturday, January 1, 2011

New year, yay.

Well, 2011 started today and honestly, I wasn't as excited as I usually am. I am always super excited for Thanksgiving and Christmas, but it just wasn't the same. I liked the stuff I got, it just didn't excite me. I dread seeing some family because they really like trying to tell me what I need to do. There is a difference between stating an opinion, and being annoying. This is public, so I really don't want to rant here, but it still drives me insane. Another party Saturday, which I'm really dreading.