Sunday, February 20, 2011


Since we are on break this week and I don't have enough ways to waste my time stuff to do, I will be coding a layout for this blog (nudges at centered blog title). Be warned: let me know about broken links, messed up looking stuff, if your computer bursts into flames while trying to open it, stuff like that. My coding skills are amazing horrible, and this is my first time doing a layout using CSS almost exclusively, with little HTML. Also, I am not responsible if your computer bursts into flames when opening my blog, wince there was probably an issue with your computer. Lol!

Friday, February 18, 2011

What you are saying is reasonable

My valentines day was actually quite nice. I saw a new rheumatologist. He came highly recommended and I can tell why! He listened to my ENTIRE medical history! By the time I get to the severity of pain I usually get "psych case. Go see a psychiatrist." (which I've done by the way) but he said something to me after I got through my entire history that nobody, even the best doctors I've seen, have said. He looked me straight in the eye and said "what you are saying is perfectly reasonable". When doing the physical exam, he took one look at the big, purple stretch marks on my arms and abdomen and told me that was abnormal and that we need to see an endocrinologist. We've mentioned this to doctors before, and me being overweight they assume it is from that. I've had these all my life. I haven't been overweight all my life. We are waiting for the endocrinologist to call back, but I feel so good now!

My personal suspicion is Cushing's. it makes sense. So happy!

Wednesday, February 9, 2011

Just a few more days!

I have just a few more days until I am going to see my new rheumatologist! I'm so excited, and really just want to go to try and figure out what's wrong with me!

I don't know how many people reading this have ever read Self-Reliance by Ralph Waldo Emerson, but I was reading it for English class the other day (If you have never seen thick language since your high school English class, this essay would not be for you. I had to read it twice to get all of the answers to the companion worksheet) and I really found that it sort of has parts that capture spoonie life, as well as my life. He says that it is not bad to be misunderstood, as a all great and pure minds are. I think all of us undiagnosed find that we are very misunderstood. I am misunderstood in my pain. I have found many doctors who misunderstand me. The brain fog make people misunderstand me (my English teacher asked me where we left off in the movie we were watching with the sub, and my response was "where the guy with the beard's wife got arrested", so the brain fog isn't that fun.) and totally take stuff I say out of context. Parts of that essay would make you think that Emerson was in our minds the whole time.

Anyway, off to do some homework. Mini flare up today, but I have to get something done!